Archive for month: July, 2018

Read the PR Newswire release here. 

23 organizations call on ASHA to withdraw misguided recommendations on RPM and FC

WASHINGTONJuly 17, 2018 /PRNewswire/ — A diverse coalition of 23 civil and disability rights organizations has called on the American Speech-Language-Hearing Association (ASHA) to withdraw two proposed position statements that recommend against the further use of methodologies known as Rapid Prompting Method (RPM) and Facilitated Communication (FC). These innovative methods teach individuals with speech-related disabilities how to communicate independently by typing and pointing to letters on letterboards.

In a letter to the ASHA Board of Directors, the coalition argued, “If ASHA decides to finalize and place its imprimatur on the position statements, the consequences will almost certainly lead to civil rights violations. ASHA’s reputation as a credible and mainstream credentialing organization that supports the rights of individuals with disabilities would be threatened.”

In requesting that ASHA withdraw the flawed proposals, the coalition raised several substantive and procedural concerns, including that the recommendations:

  • may cause schools to violate the Americans with Disabilities Act;
  • are based on the unfounded and discriminatory presumption that people with speech-related disabilities are incapable of complex thought; and
  • were developed behind closed doors and without the input of any users, professionals, or ASHA members with experience with these methods.

Signing organizations include The Arc of the United States, Autistic Self Advocacy Network (ASAN), Burton Blatt Institute, Center for Public Representation, Council of Parent Attorneys and Advocates, Inclusion International, the National Disability Rights Network, and TASH.

ASAN Executive Director Julia Bascom commented that “each non-speaking person has a right to use the method of communication that works best for them.” Bascom said the ASHA statements could “dramatically undermine the right of all people to the individualized supports they may need in order to communicate. Losing an effective form of communication can result in frustration, isolation, and trauma.”

Since being proposed on June 1, 2018, the ASHA position statements have sparked significant stakeholder concern and helped mobilize a parallel grassroots effort to vigorously support communication choice for non- speaking children and adults living with various neurological and motor disabilities, including autism. The resulting campaign is committed to defending every citizen’s right to access their preferred means of communication to express their thoughts. More information can be found at http://UnitedForCommunicationChoice.org.

 

A documentary based on the best-selling book of the same name by Andrew Solomon, which shares intimate stories of families with children who have disabilities. The documentary features a group of children who type and use letterboards to communicate. See the preview here and the documentary’s release schedule here.

PDF of Letter

PDF of Press Release

July 16, 2018

Board of Directors
American Speech-Language-Hearing Association (ASHA)
2200 Research Boulevard
Rockville, MD 20850-3289

To the ASHA Board of Directors,

We write to respectfully urge you to withdraw two proposed position statements that recommend against the further use of methodologies designed to teach individuals with speech-related disabilities how to communicate using letterboards and keyboards.[1] Our request is grounded in the following concerns:

First, practitioners who follow the proposed recommendations risk being found in violation of the Americans with Disabilities Act (ADA). ADA regulations mandate that public entities, including schools, support an individual’s preferred means of communication except in extenuating circumstances. 28 C.F.R. § 35.160. The statements, if finalized, would put ASHA members and their employers in the awkward and untenable position of deciding whether to comply with federal law or with the contrary guidance of a nonprofit credentialing organization.

Second, the proposed recommendations are grounded dubiously on the absence of quantitative evidence. Any ASHA decision that could result in the denial of access to communication for hundreds if not thousands of individuals with disabilities and thus an infringement of their civil rights ought to be subject to an extraordinary burden of proof. Pointing out a need for additional research may be appropriate, but recommending that all practice cease in the meantime is not.

Third, the premise underlying the proposed statements—that the individuals using these methods are not capable of the complex thoughts they express—is unfounded and discriminatory. This echoes historical attitudes that neglected the capabilities of other populations with communication disabilities, including those who are Blind, Deaf, Deaf-Blind, or have physical disabilities affecting speech.

Finally, the process of developing the proposed statements lacked transparency and a diversity of inputs. Our understanding is that the committee refused to allow any user or professional (including ASHA members) with experience in either methodology to participate in or provide input into the committee’s year-long review process of developing the proposals.

If ASHA decides to finalize and place its imprimatur on the position statements, the consequences will almost certainly lead to civil rights violations. ASHA’s reputation as a credible and mainstream credentialing organization that supports the rights of individuals with disabilities would be threatened. Given the stakes, we urge you to withdraw the proposed position statements from further consideration.

Sincerely,

Alliance for Citizen Directed Supports

The Arc of the United States

Autism and Communication Center

Autism National Committee

Autistic Self Advocacy Network

Autistic Women & Nonbinary Network

Burton Blatt Institute

Center for Public Representation

Council of Parent Attorneys and Advocates

Foundations for Divergent Minds

Gamaliel Network

Inclusion International

Institute on Communication and Inclusion

National Disability Rights Network

Nonspeaking Community Consortium

Ollibean

PEAK Parent Center

Quality Trust

Reid’s Gift

SLP Neurodiversity Collective

TASH

Thinking Person’s Guide to Autism

United for Communication Choice

[1] https://www.asha.org/peer-review/Proposed-ASHA-Position-Statement-Rapid-Prompting-Method/; https://www.asha.org/peer-review/Proposed-ASHA-Position-Statement-Facilitated-Communication/